Well I am feeling CF again today, or am I just feeling like a normal exhausted person? I've had a week and a half off and have spent it -this last week doing heavy exercise with my Mum and little sis lol. Me and Mum are on diets with the wedding nearing and I have been blading which was amazing, exercise DVD and swimming! We're bike riding tomorrow then gym in the evening! This afternoon I'm recovering a little! Don't panic fellow CF'ers I have discussed the diet with my dietician and she is happy as long as it's controlled and my BMI remains above 22. I worked out that means I can go down to 8 stone 13 then I must stick, already down to 9 stone 2 from 9 stone 10 so not far to go, then I must Just keep up the exercise to tone but carry on eating to keep weight. Can't wait to try my wedding dress on again..eek! Like less than 8 weeks now!
My latest appointment at clinic was okay, except for being told that I don't see the doctor enough, even though I explain every time: that coming 2 hours for an hour appointment ruins my days off work and if anything dent my health more than anything! Well my lung function was 2.0 which I think worked out 67% so not bad, I would love to get it back in to the 70's but I would imagine I need Iv's for that and the hospital said I couldn't have Iv's last week (even though I thought I'd organised it with one of the nurses) because it was Easter and they had four days off, so we can't have tobi blood tests or home care organised until after but I can't do any other weeks because of work so they lumped me off with antibiotics - the same ones I always have! and we have now organised to wait until AUGUST! unless I get ill in the meantime. so no pre-wedding IV's:( got to count on staying well and orals. The next Iv's are pre-honeymoon as that's in September!
No-one will probably read this and I have gabbled on but if any one has then Hope your well and thanks for reading!