Sunday, 25 April 2010

One More Day to go!

Iv's finish tomorrow! wahoooo!

Been on Iv's for two weeks tomorrow! Think they have benefitted me:D Hopefully this will keep me well for the summer now, that is the plan! I only stayed in hospital for two nights this time which was a bonus, though at the beginning i really thought it was the worst stay...i have a needle phobia and had to have 5 needles over that 48 hours! Luckily 4 of them were in my port which doesn't bother me so much, though the problem is where my port is SO tiny (as i had it put in when i was eight) the needle always pops out and when it does it stays half in half out and for some unknown reason sends shooting pains down my back and tingles into my arm as if the needle is hitting a nerve....this hurts ALOT! Luckily my mum stays in hospital with me, but i need to stop this as i'm nineteen and i don't think she's going to be happy still having to stay with me when im in like my 30's! 40's! and beyond! I get her to stay because im not happy with the care on the ward that i get and at the moment i'm in two minds over changing!

So it's back to normality, back to living with my boyfriend, back to work and back to not having to have meds at 6.30am, 1.30 and 9.30pm! I will miss seeing so much of my parents and spending time with my sisters so much (been messing around with the littlest one for hours everyday). However, I am looking forward to being back with my gorgeous man, i mean once you start living together, being apart is torture and when your on IV's and all emotional it's even harder!!! And he couldn't stay at my parents with me often as he is a retained firefighter and has to be on call constantly! And my parents house is twenty minutes away from ours.
I'm a little nervous about going back to work, it's been so long, going to feel wierd getting back into the routine but at the same time, i need to work as i was getting rather bored not doing anything important and i need the money!! Saying that i have actually got four days of next week off as annual leave! So it's swimming teaching tomorrow night, youth club Tuesday and then off again till the following wednesday, then really got to get back into it all!

My boyfriend and I are trying to plan to do alot more exercise now to keep me more fit and for himself! It's alot easier now it's summer. My plan is to start with the exercise plan tomorrow, do at least half hour of something...walking, trampolining, jogging on spot, gym, swim e.t.c. Im going to record it and track my weight and lung function...this regime will probably last all of what? two weeks max!

Thanks for reading:D

Friday, 23 April 2010

First time blogger:D

I never really thought of doing a blog, i often write in a diary at home, that's where i let any feelings and memories out. Then i was just browsing the cystic fibrosis site (I spend alot of time there when im on iv's) and i saw quite alot of the writers there keep a blog and i read a few and wow really rather inspiring! Bare with me though as to be honest i have no idea what im doing.

A little intoduction, i'm 19 with cystic fibrosis! I have a fab family, boyfriend and friends. I have a mum, dad and two little sisters, one 15 without cf and the other 7 with cf. (I also have a 7 year old cousin with cf). Wow aren't we a healthy bunch lol! But we are all doing well. I don't see my cousin much though as she lives a good few hours away! I live with my boyfriend, he is the best, we have been together over a year and a half now and he looks after me very well and makes me very happy:D The weather seems to have a big affect on my health and my moods, so while the sun is shining so am i:)

Im not disclosing my name on here, purely because im a youth worker and i just worry if any of the young people look me up i don't want them knowing my business! Anyway yeah so i'm doing my NVQ 2 in youth work at the moment and i am loving it, hoping to do it at uni next year! The only struggle i am having is working five evenings a week can be quite tiring and sessions are right at the time i'd like to be doing physio and machines and stuff, but we're getting round it!

My health at the moment is pretty good, on IV's but thats just for a boost and my mid IV lung function was 2.2 which is good for me....wish i could tell you what that means in percentage but i asked my team and they didn't no. But it's good so thats all i need to know! And the main thing is im feeling well, been on trampoline everyday for the last week and for walks with the family dog! (living at parents while on iv's as dont trust myself to do them without my mum yet and have had wheeey tooo many alleric reactions where i stop breathing and swell up like a big ballooon to chance things!).

Well i will stop writing now otherwise you'll be bored of me before i even get started.
Take care everyone:D