Fun day, work, friends, CF, antibiotics...

Yesterday we had a fun day at work, it was fab! We have different groups at work and in our groups we had to dress up, we dressed up as surgeons. We then had to play team building games, they had a blow up bungee run, three legged race, egg and spoon race, quiz's and we had to build something out of boxes, which we made a train and it was the only competition of the day that our team actually won! That was from 11am - 2pm, I then had to stay on for the late shift 2pm - 10pm, so yes exhausted when I got home!

It's really annoying all my uni friends are back home and keep inviting me out to do things, all of which I'd love to do but I don't get the summer off like them, obviously, and my two days off I usually do something one day and nothing the other so I don't get ill, I use that day to catch up on sleep, relax, tidy a bit and do extra good physio's. So I have to keep saying sorry I can't and it's annoying as I desperately want to see them! Luckily we have finally come up with a date that we can all meet up, 29th July so we are doing lunch and garden games e.g. badminton which I LOVE! That night I then have a wedding reception to go to to so busy busy busy! Last week I spent my day off travelling to London for a CF clinic and annual review follow up which I wrote about, this week I have to go for a scan on my day off, then the other day I made plans to do wedding stuff, so no day of nothing again!

I have a really niggling cough, which I had when I went for my annual review follow up, but my lung function was fine, so they had no concerns. The cough is still here and I dont know what to do! I told my Doc that I have antibiotics 6-7 times a year and he said that's a bit too much and maybe i have them too soon before I need them, so Im trying to drag out this time as Im kind of concerned I already have had 4 lots, though I needed them as I got very ill when my parents split up and I started my job etc! Don't know how long to leave it? Perhaps I will arrange a Lung function again in a couple of weeks! As soon as that starts to go down I reckon I need something!

Hope your all well and massive thoughts with Kirstie who received her lung transplant yesterday and begins the recovery procedure's today! Take care xx

Fun day, work, friends, CF, antibiotics...

Yesterday we had a fun day at work, it was fab! We have different groups at work and in our groups we had to dress up, we dressed up as surgeons. We then had to play team building games, they had a blow up bungee run, three legged race, egg and spoon race, quiz's and we had to build something out of boxes, which we made a train and it was the only competition of the day that our team actually won! That was from 11am - 2pm, I then had to stay on for the late shift 2pm - 10pm, so yes exhausted when I got home!

It's really annoying all my uni friends are back home and keep inviting me out to do things, all of which I'd love to do but I don't get the summer off like them, obviously, and my two days off I usually do something one day and nothing the other so I don't get ill, I use that day to catch up on sleep, relax, tidy a bit and do extra good physio's. So I have to keep saying sorry I can't and it's annoying as I desperately want to see them! Luckily we have finally come up with a date that we can all meet up, 29th July so we are doing lunch and garden games e.g. badminton which I LOVE! That night I then have a wedding reception to go to to so busy busy busy! Last week I spent my day off travelling to London for a CF clinic and annual review follow up which I wrote about, this week I have to go for a scan on my day off, then the other day I made plans to do wedding stuff, so no day of nothing again!

I have a really niggling cough, which I had when I went for my annual review follow up, but my lung function was fine, so they had no concerns. The cough is still here and I dont know what to do! I told my Doc that I have antibiotics 6-7 times a year and he said that's a bit too much and maybe i have them too soon before I need them, so Im trying to drag out this time as Im kind of concerned I already have had 4 lots, though I needed them as I got very ill when my parents split up and I started my job etc! Don't know how long to leave it? Perhaps I will arrange a Lung function again in a couple of weeks! As soon as that starts to go down I reckon I need something!

Hope your all well and massive thoughts with Kirstie who received her lung transplant yesterday and begins the recovery procedure's today! Take care xx

I have a little bit of spare time to write whilst I am doing my Physio and getting ready for work. I have a day off tomorrow which I desperately need, I will just sleep literally all day. My partner is working so I'm just going to waste the day until he gets home. We then have his sister and her partner over who have just announced she is 3 months pregnant! Yay so exciting. Then Thurs and Friday I am working and we have my partners best friend over for dinner Friday night, Sat we have my best friend over for dinner and Sun I am going to one of my family friends house for a BBQ! So a busy weekend but its rare that I have a weekend off so we are making the most of it!

What else has been going on? Well My partner and I spent two weeks in Spain, came back last Monday. It was brill, we mainly relaxed but also did lots of swimming and quite a lot of walking either to markets or the local bar. I found the heat brilliant in the day but it took my breath away at night and made it really hard to sleep! It was 41'C on the hottest day!!

Then once back, on the Thursday I had a hospital appointment, went quite well really. To start off I had a different doctor who was fantastic! lung function was 2.12 (70%), Xray had no change, liver slightly fatty (no concerns though), calcium and vit D levels really good. The only issue was my glucose levels they want to do as something showed slightly high, so we will do that soon. In the meantime I finally encouraged myself to do the finger prick blood tests and check them out. I did 5 so far and all the readings have been fine except the one before lunch where it was 3.3, it has been thought in the past I go hypoglycaemic as I get dizzy ish, shakey, a cold sweat and tingly and HAVE to eat when I feel like that! So that was just proof that all those symptoms mean I'm low! Hopefully not diabetic though - I am going to send the results to my dietician. Lastly we discussed changing my port as mine has been pants for my last few admissions and I finally plucked up the courage to start thinking about a new one! Think it's going to happen this year!! As I said I want it before I get married so I can have some IV's and get seriously well before wedding and honeymoon! I have to have a scan first to check for blood vessels!

On to the wedding 11 months and 4 days...eek! Yesterday I went to pay a 2nd deposit at my venue but it was a right shambles, the person had gone off work sick, so couldn't pay and we left, back to Mums and I realise I left my card there so all the way back and still no deposit paid! Anyway we are going to try on the 15th July now! We are also going to some travel agents to find options for honeymoon wahoo! All so exciting!

Anyway I best get on with some more physio, tobi and lunch before heading to work for a late shift! Take care all xx