1 week in...

Had bit of a nightmare with needles poppin out my port and causing me pain. Though I was so stressed I would get ill rather than better but somehow my Lung function is up to 2.1 (69%) So something must be going right. Me x

Lung Function ..

Its down to 1.88 - 1.91 ish, thats what I think it said anyway, i forgot to ask.
So it has gone down quite a bit.
Want to work really hard to get it back up, but can't do sit ups etc cos my port needle will pop out, it''s already come out once and it reli hurts when it does it. Will go for a nice long walk with mum later that should help! and just do some good physio's.
Managed to have my Tobi bloods taken from my port...so chuffed. bet i'l need them out my arm Monday as am not that lucky!
Hope everyone is well
x

Drama on The Motorway

So Monday...Time for Hospital and IV's...went up in Mums car, with MuM, All seemed to be going well, we were chatting away, Then the car started making the oddest noise. I was like ''OH MY GOD mum get to the hard shoulder'' Then the car stopped working she couldn't change gears or anything, slowed down and got on to the motorway but then it kept rolling very slowly and the brakes weren't working. I pulled the hand brake up and mum turned the key off but the car kept running. Mum had noticed in her mirror smoke, the smoke started to poor out the exhaust, thick and black and ended up filling 4 whole lanes of motorway- was so scared it was going to cause a crash and our car looked like it was about to blow. Two C.I.D officers had luckily passed and seen and pulled over to help us, as we were quite nervous wrecks and had no idea what motorway we were on. These men phoned the fire brigade...We ended up with the C.I.D officers, 2 fire engines, traffic officers and the AA man who had to tow mums car and us the whole way back home, so a whole day out and never even got to Hospital. So was post poned till today.

Started IV's today ( a day late) and my port bled back. I have that fear of needles and my port hasn't bled back in years, then in the last month it has bled back straight away twice, so lets hope this is what the future holds but we will see. I reckon the push ups I have been doing has helped!

Thanks for reading.

IV's on Monday

Has been about 5 months since I had my IV's, in that time I have been my best ever but in the last three weeks or so I have felt my worst:( For the very fist time I am desperate for these IV's and I keep worrying myself, what if they dont help? I haven't had a lung function done for about a month now, I'm reckoning we are going to see a nose dive. I cant even seem to complete a set of crunches, sit ups and little push ups now without being absolutely knackered and chest pain! I'm only going in as a daycase this time, this is new! Its because they dont have any side rooms, then I have to go back up Tuesday for Tobi Levels...O the joys!!! I'm planning on exercising (back to the sit ups and walks and stuff) once on Iv's, as the last month I have been pretty poor at doing them, but I have had so much going on: Moving house, new jobs e.t.c. I haven't had a full nights sleep in ages because I always wake coughing so so much, i've become like adicted to halls because there the only thing that stop it!
Anyway having the IV's and pushing the exercise is all in good cause, not only to be well but I am going to Florida, America in 5 weeks and 2 and a half days!!!!! So excited. With my boyfriend, mum, dad and lovely little sisters. This is why I have got to get better, and this is why i'm so worried what if the Iv's dont have a good enough effect! I reli need to get motivated, as it's hard when your feeling crappy and extremely tired!

I will update soon on what I find out my lung function is and how the Iv's go!
Hope everyone is well
Mogzi x