Busy Long weekend

On Wednesday I worked a 13 hour shift and this meant I got given Sunday Off, I'd already worked last week on my day off so had been granted this Saturday off and already had my normal Thursday, Friday off. Making this a very lovely long weekend off!

Thursday I went out for lunch with Dad, this was lovely, hadn't seen him for ages because I didn't want to meet his new girlfriend and he has broken his collar bone so can't drive. I picked him up and we went to a local brewers Fayre. I got chicken, bacon, cheese and barbecue sauce with chips, salad, garlic bread and coleslaw. On top of this we ordered onion rings! We got 20 each and both eat them all! Felt ill after, but still, it was quite an achievement!

Friday I went out for breakfast with Marc and his best friend. It was buffet for the hash browns, beans, tomatoes, egg, mushroom.... so eat lots of that but I was still hurting from how much I ate the day before so I eat half a ration of bacon and couldn't even touch the sausage. We didn't need lunch then went to my Mums to surprise my sister for her 9th Birthday, We'd bought her a bike and wanted to hide it in the lounge before she got home from school. She was very surprised (especially as it was a day early) and took it out to show all her friends that were still at the park next to school. We then went out for buffet Chinese, which is amazing and I stuffed my face again (For the last time in a while as I really won't fit in my wedding dress next year!). We then went to some amusements, won two voodoo doll key rings on the 2p machines and won a teddy on the claw machine which had a £5 attached to it, win!

Yesterday went to the boot sale, not very much there as it was the last one and wasn't sure the weather would hold. However got 2 DVD's for myself and 1 for someone at work! Marc got a griddle frying pan that he has been wanting and his sister got some maternity clothes and baby toys...I get so broody it's unreal! We then had lunch together and went for a walk with Marc's sister and sister in-law and nephew who is also gorgeous and makes me broody, they took there dog's too who are soo excitable. I was feeling really exhausted, legs hurt and lungs ached but I pushed myself to keep up and no-one ever see's me struggle, except Marc but that's because I moan and moan and moan to him ha-ha... Marc and I then cooked a nice healthy dinner together of smoked haddock, mash, broccoli, cauliflower and leeks. So we're now in to our healthy eating plan which started yesterday and I have planned meals for at least a month...this is to help with his medicals and my fitting in to my wedding dress next year.

Today Marc and I have been watching remembrance documentaries for 9/11, the new ground zero re-build looks amazing and the effort put in is astonishing. The stories of all the lost loved ones is so hard to watch but everyone should to get a real feel for those people and what went on that day. 10 years on, R.I.P to all those lost. Later on I'm going to a fate that both my Mum and Dad organise (awkward) to raise money for the bonfire society that they are both members (awkward again). Annoying thing is is we keep having really heavy showers so don't know if it will get very busy! And we have to park in a field so I'm sure I will get stuck if it gets too boggy but I'm going to go and I'll spend a £10 to help them out and you never know if I have the same luck I had at the amusements I could win something!

Hope everyone else has had a nice weekend!

Where to start....

Well I think the best place to start is by writing about how I bought my wedding dress last week! It is beautiful, can't go in to too much detail in case my husband to be stumbles across my Blog, I must say though my CF shaped figure was rather inconvenient. A size 12 dress was too small for me in one style yet the style I ended up wanting she said the size 8 was too small on my hips and bum but fitted perfectly round the rest of me, we ended up getting a size 6 (which I never am and never will be that size) but it fitted my bum and hips perfectly and she showed me how to do it up at the top which also made it fit perfect everywhere else. O how I love my tiny bum and legs but huge pregnant like stomach (which I am not , pregnant, just to clarify). Luckily the woman was very helpful and showed me how to hide all the unwanted bits haha. Wow can't believe it is coming round so quick and I am getting married next year! It is so exciting, we seem to be very well organised at the moment, that's what people keep saying anyway, they just don't know that we have put deposit's on everything and are hoping we will somehow be able to pay for it all ha!! I know we can do it and it's going to be the best day ever.

I also went to Madame Tussauds Sunday, that was pretty fun, definitely trying to plan a whole day trip to London now, especially as I have a merlin pass and a pass so I can take a carer and my sister's and Mum have them, so cheap days out. we have already got our moneys worth since we bought them in April we have done Chessington twice, Thorpe park once, three days in Alton Towers and now the Madame Tussauds. Mum got them on her clubcard points from Tesco's so well worth it.

My partner is in the mid of trying to get a new job, another thing I can't write too much about as he is so close and I really don't want to jinx it for him. Just be keeping your finger's crossed! So that's another really exciting thing.

I am in the mid of writing up a month's healthy eating plan for the both of us, I can't afford to put on any more weight, I do usually stay the same so it's good but I would like to eat a little healthier as sometimes we both just end up binging on chocolate! and prawn crackers is our latest thing, a huge bag as an evening snack lol. My partner has medicals coming up for this possible job so he wants to get super healthy, he is physically really fit and runs alot, goes cycling, rowing machine at his present work a lot so he wants to keep that up but just eat a tiny bit healthier e.g bring more fish into our eating and lots of different vegetables. We do eat well anyway, our portions could just do with a little down sizing really. So will keep you updated on how everything goes.

Other than this I am busy working 40 + hours a week. I have my little sister's Birthday coming up and can't wait to give her the bike we have bought her, then we are going to cosmos for dinner:) the healthy eating starts the day after of course! Me and my partner amaze everyone on how much we eat at cosmos, it's the best ever! especially as Chinese is by far our favourite take away and cosmos is all you can eat!!

Sorry when I write it's just all over the place, random thought's and doings from the week but that's how my mind works, constantly thinking and randomly remembering things, I live off too do lists otherwise I'd forget to do everything and anything, I blame CF for this too as we have a lot more to remember than a lot of people like all the meds that keep us going!

Take care all, especially as I think we can all feel the dreaded Autumn/ winter coming, well before it's due date! (did it even ever leave?)

Good morning:D

Good Morning everyone, hope your all well! I'm in a rather good mood this morning:D Last week I went through a very depressed period of 3 days crying about things that were getting to me. Isn't it weird that you have all these feeling and things on your mind that when your in a stable mood you can just kick to the back of your mind, yet you get on some antibiotics (Linezolid and Ciprofloxacin) and your emotions just hit the rocks and everything seems a hundred times worse, unresolvable and all you can do is cry and feel sorry for yourself. On the second weeks of my IV's now, the emotions are pretty stable again, the mucus production has gone down a lot! But the thrush that is now in my throat and on my tongue is causing an irritable cough and my lungs are for some reason very achy.

Heard some good news yesterday, not going to share as it's not final yet and I don't want to jinx it, but it's to do with my gorgeous fiancee, so just keep your fingers crossed for him anyway!

I'm in the middle of glucose test at the moment. I had the initial blood test, thank you port for bleeding back and please keep it up for the next stage. I drank the disgusting thick syrup sweet sticky drink and had a chat with my nurse about work, parents and life. I told her the bloods I had done before on the small testing thing and she thinks they are running high...eek. Please NO! Wish me luck, I'm an utter phobic of needles and diabetes would be a real struggle for that. Anyway so she is back at 11am for the other blood test which she will then send to the labs where the check to different things to see if it's diabetes or not. Apparently my last proper test showed one part was high but the other was okay ... I also have lung function when she gets back which I'm nervous about, I just hope it's not down too much! Or at all really, it always worries me.

I have a meeting with the surgeon on the 1st September , about changing my port, so nervous about all this. I wish I didn't need to but it is the best for the long run. Will be able to have Iv's hopefully without too much stress. My port needle always pops out when I have Iv's you see. I'm just very scared about having to have an operation and a needle in my arm to put the anaesthetic in. Then what if the port isn't as good as my current one? Anyway will no more on the 1st!

Hope everyone is keeping well, Take care.

Nothing ever goes to plan....

I rushed home, obviously sticking to the limits, as I wanted to get home to join my fiancee and his best friend in the beer garden on what is a beautiful sunny day! Half way home I realise I have accidently brought home the safe key and I'm not on until a late tomorrow so I have to drive all the way back to work then drive all the way back home again, I finished work at 1500, home by 1610, that sucked to start with. Then as I pull up outside mine I ring to see if there still at the local and nope he is on a call....so instead of pubbing it, like a good girl I go home and get straight on with physio and tobramycin (nebulizer) as we have plans to go to the cinema. Film starts at 18.15 so plenty of time....only his call turns into 3 calls in a row and still no Marc on the scene:( Now my sisters and Mum are on the way, and we all feel too guilty to see cars 2 without Marc, we are all pixar geeks but cars is Marcs ultimate favorite.... we will decide what to do once there here.... Nothing ever goes to plan....especially when you're with a retained firefighter!!! And he jokes about staying on call on our wedding day, and people wonder why we are having our wedding half hour away from this area!!

Not only am I stressed because of this, work has been MANIC the last few days, can't really explain as confidentiality and all that, but lets just say today someone left a tap on and the roof caved in in the kitchen where I was working.... and Sunday gone was even madder than that but I cant go into details...

Off to cinema, maybe? Then dinner, then home to get some well needed sleep before my 6th day work in a row tomorrow! Those 6 days including one 11 hour shift yesterday! yawn! and to top it all off I have a cold brewing! However on Friday it's 2 whole months off any antibiotics or iV's so we're chineseing to celebrate

Fun day, work, friends, CF, antibiotics...

Yesterday we had a fun day at work, it was fab! We have different groups at work and in our groups we had to dress up, we dressed up as surgeons. We then had to play team building games, they had a blow up bungee run, three legged race, egg and spoon race, quiz's and we had to build something out of boxes, which we made a train and it was the only competition of the day that our team actually won! That was from 11am - 2pm, I then had to stay on for the late shift 2pm - 10pm, so yes exhausted when I got home!

It's really annoying all my uni friends are back home and keep inviting me out to do things, all of which I'd love to do but I don't get the summer off like them, obviously, and my two days off I usually do something one day and nothing the other so I don't get ill, I use that day to catch up on sleep, relax, tidy a bit and do extra good physio's. So I have to keep saying sorry I can't and it's annoying as I desperately want to see them! Luckily we have finally come up with a date that we can all meet up, 29th July so we are doing lunch and garden games e.g. badminton which I LOVE! That night I then have a wedding reception to go to to so busy busy busy! Last week I spent my day off travelling to London for a CF clinic and annual review follow up which I wrote about, this week I have to go for a scan on my day off, then the other day I made plans to do wedding stuff, so no day of nothing again!

I have a really niggling cough, which I had when I went for my annual review follow up, but my lung function was fine, so they had no concerns. The cough is still here and I dont know what to do! I told my Doc that I have antibiotics 6-7 times a year and he said that's a bit too much and maybe i have them too soon before I need them, so Im trying to drag out this time as Im kind of concerned I already have had 4 lots, though I needed them as I got very ill when my parents split up and I started my job etc! Don't know how long to leave it? Perhaps I will arrange a Lung function again in a couple of weeks! As soon as that starts to go down I reckon I need something!

Hope your all well and massive thoughts with Kirstie who received her lung transplant yesterday and begins the recovery procedure's today! Take care xx

Fun day, work, friends, CF, antibiotics...

Yesterday we had a fun day at work, it was fab! We have different groups at work and in our groups we had to dress up, we dressed up as surgeons. We then had to play team building games, they had a blow up bungee run, three legged race, egg and spoon race, quiz's and we had to build something out of boxes, which we made a train and it was the only competition of the day that our team actually won! That was from 11am - 2pm, I then had to stay on for the late shift 2pm - 10pm, so yes exhausted when I got home!

It's really annoying all my uni friends are back home and keep inviting me out to do things, all of which I'd love to do but I don't get the summer off like them, obviously, and my two days off I usually do something one day and nothing the other so I don't get ill, I use that day to catch up on sleep, relax, tidy a bit and do extra good physio's. So I have to keep saying sorry I can't and it's annoying as I desperately want to see them! Luckily we have finally come up with a date that we can all meet up, 29th July so we are doing lunch and garden games e.g. badminton which I LOVE! That night I then have a wedding reception to go to to so busy busy busy! Last week I spent my day off travelling to London for a CF clinic and annual review follow up which I wrote about, this week I have to go for a scan on my day off, then the other day I made plans to do wedding stuff, so no day of nothing again!

I have a really niggling cough, which I had when I went for my annual review follow up, but my lung function was fine, so they had no concerns. The cough is still here and I dont know what to do! I told my Doc that I have antibiotics 6-7 times a year and he said that's a bit too much and maybe i have them too soon before I need them, so Im trying to drag out this time as Im kind of concerned I already have had 4 lots, though I needed them as I got very ill when my parents split up and I started my job etc! Don't know how long to leave it? Perhaps I will arrange a Lung function again in a couple of weeks! As soon as that starts to go down I reckon I need something!

Hope your all well and massive thoughts with Kirstie who received her lung transplant yesterday and begins the recovery procedure's today! Take care xx

I have a little bit of spare time to write whilst I am doing my Physio and getting ready for work. I have a day off tomorrow which I desperately need, I will just sleep literally all day. My partner is working so I'm just going to waste the day until he gets home. We then have his sister and her partner over who have just announced she is 3 months pregnant! Yay so exciting. Then Thurs and Friday I am working and we have my partners best friend over for dinner Friday night, Sat we have my best friend over for dinner and Sun I am going to one of my family friends house for a BBQ! So a busy weekend but its rare that I have a weekend off so we are making the most of it!

What else has been going on? Well My partner and I spent two weeks in Spain, came back last Monday. It was brill, we mainly relaxed but also did lots of swimming and quite a lot of walking either to markets or the local bar. I found the heat brilliant in the day but it took my breath away at night and made it really hard to sleep! It was 41'C on the hottest day!!

Then once back, on the Thursday I had a hospital appointment, went quite well really. To start off I had a different doctor who was fantastic! lung function was 2.12 (70%), Xray had no change, liver slightly fatty (no concerns though), calcium and vit D levels really good. The only issue was my glucose levels they want to do as something showed slightly high, so we will do that soon. In the meantime I finally encouraged myself to do the finger prick blood tests and check them out. I did 5 so far and all the readings have been fine except the one before lunch where it was 3.3, it has been thought in the past I go hypoglycaemic as I get dizzy ish, shakey, a cold sweat and tingly and HAVE to eat when I feel like that! So that was just proof that all those symptoms mean I'm low! Hopefully not diabetic though - I am going to send the results to my dietician. Lastly we discussed changing my port as mine has been pants for my last few admissions and I finally plucked up the courage to start thinking about a new one! Think it's going to happen this year!! As I said I want it before I get married so I can have some IV's and get seriously well before wedding and honeymoon! I have to have a scan first to check for blood vessels!

On to the wedding 11 months and 4 days...eek! Yesterday I went to pay a 2nd deposit at my venue but it was a right shambles, the person had gone off work sick, so couldn't pay and we left, back to Mums and I realise I left my card there so all the way back and still no deposit paid! Anyway we are going to try on the 15th July now! We are also going to some travel agents to find options for honeymoon wahoo! All so exciting!

Anyway I best get on with some more physio, tobi and lunch before heading to work for a late shift! Take care all xx