Iv time, hassles and bonuses.

So I started Iv's Monday, first time ever being day cased, literally had a blood test had the first doses of my Iv's (Fostfamycin and Tobramycin) and was sent on my way! It all seemed very organised. My hands had started tingling after my meds but I get this tingling sensation in my hands quite often and randomly when I'm not on Iv's and it usually stays for an hour and goes. I keep meaning to see a Doc about it but then forget till it happens again! This time I happened for 8 hours and I was starting to pannic.... was it a reaction as I am allergic to a lot of Iv's? Had something happened to the nerves in my hand? Was it going to stop?!! When we got home Mum did some research on the internet and it came up as a common side effect of high blood sugars, which I am borderline and I'd eaten a lot of chocolate that day and they had started putting my meds in Glucose instead of water for the first time ever....so maybe? So I told them I wanted my meds in water from now on and I have been fine so far so fingers crossed!

Anyone who reads my blogs will know I have a real phobia of needles and I can't deal with blood tests. Monday my port bled back fine so no concerns..it has been bleeding back all year so I had no concerns but then yesterday it decided to just stop! I was so angry/ upset and ready to just give up the Iv's. My nurse then tried a blood test, knowing how phobic I was and she missed my vein and then was wiggling it about trying to get it in a vein which was horrid!! So then I didn't want her to have another go so had to wait for an F1 blood testing doctor who was amazing and had a good old feel and got it in one! Thank goodness because I was so worked up I felt like I was going to be sick! So that was that over but should Imagine I will be going through it all again for blood tests next week!

Next moan, the home care delivery company! Guess what time they delivered my fridge meds that we had been waiting all day for 00:30! and they rang the house phone when they were near and banged on the door loud enough to wake my 2 little sisters up! Really quite ridiculous!

Anyway now I think we're sorted and should have a good few weeks. Marc and my grandparents are over tonight as we are doing a family come dine with me! My littlest sister is starting tonight and she is making leek and potato soup, pizza and salad and harribo cupcakes! so should be good! I also have lots more planned for the 2 weeks, start some diploma work, help Mum sort and tidy there house up, get some mega good physio's done, paint my nails, sort out my wardrobes, take some nice pictures of the family..(ready for Mums xmas present shhh..) watch some DvD's and see my friends that I haven't seen for ages and oooh hopefully my iphone 4s will arrive, never had an amazing phone so super excited!

Last thing to report was there was a small tornado in our area yesterday evening, I didn't see it but lots of people have put some awesome pictures on facebook and it made the news so bit of excitement for Sussex.

Hope everyone is well! M x

Good morning:D

Good Morning everyone, hope your all well! I'm in a rather good mood this morning:D Last week I went through a very depressed period of 3 days crying about things that were getting to me. Isn't it weird that you have all these feeling and things on your mind that when your in a stable mood you can just kick to the back of your mind, yet you get on some antibiotics (Linezolid and Ciprofloxacin) and your emotions just hit the rocks and everything seems a hundred times worse, unresolvable and all you can do is cry and feel sorry for yourself. On the second weeks of my IV's now, the emotions are pretty stable again, the mucus production has gone down a lot! But the thrush that is now in my throat and on my tongue is causing an irritable cough and my lungs are for some reason very achy.

Heard some good news yesterday, not going to share as it's not final yet and I don't want to jinx it, but it's to do with my gorgeous fiancee, so just keep your fingers crossed for him anyway!

I'm in the middle of glucose test at the moment. I had the initial blood test, thank you port for bleeding back and please keep it up for the next stage. I drank the disgusting thick syrup sweet sticky drink and had a chat with my nurse about work, parents and life. I told her the bloods I had done before on the small testing thing and she thinks they are running high...eek. Please NO! Wish me luck, I'm an utter phobic of needles and diabetes would be a real struggle for that. Anyway so she is back at 11am for the other blood test which she will then send to the labs where the check to different things to see if it's diabetes or not. Apparently my last proper test showed one part was high but the other was okay ... I also have lung function when she gets back which I'm nervous about, I just hope it's not down too much! Or at all really, it always worries me.

I have a meeting with the surgeon on the 1st September , about changing my port, so nervous about all this. I wish I didn't need to but it is the best for the long run. Will be able to have Iv's hopefully without too much stress. My port needle always pops out when I have Iv's you see. I'm just very scared about having to have an operation and a needle in my arm to put the anaesthetic in. Then what if the port isn't as good as my current one? Anyway will no more on the 1st!

Hope everyone is keeping well, Take care.