1 week in...

Had bit of a nightmare with needles poppin out my port and causing me pain. Though I was so stressed I would get ill rather than better but somehow my Lung function is up to 2.1 (69%) So something must be going right. Me x

Lung Function ..

Its down to 1.88 - 1.91 ish, thats what I think it said anyway, i forgot to ask.
So it has gone down quite a bit.
Want to work really hard to get it back up, but can't do sit ups etc cos my port needle will pop out, it''s already come out once and it reli hurts when it does it. Will go for a nice long walk with mum later that should help! and just do some good physio's.
Managed to have my Tobi bloods taken from my port...so chuffed. bet i'l need them out my arm Monday as am not that lucky!
Hope everyone is well
x

Drama on The Motorway

So Monday...Time for Hospital and IV's...went up in Mums car, with MuM, All seemed to be going well, we were chatting away, Then the car started making the oddest noise. I was like ''OH MY GOD mum get to the hard shoulder'' Then the car stopped working she couldn't change gears or anything, slowed down and got on to the motorway but then it kept rolling very slowly and the brakes weren't working. I pulled the hand brake up and mum turned the key off but the car kept running. Mum had noticed in her mirror smoke, the smoke started to poor out the exhaust, thick and black and ended up filling 4 whole lanes of motorway- was so scared it was going to cause a crash and our car looked like it was about to blow. Two C.I.D officers had luckily passed and seen and pulled over to help us, as we were quite nervous wrecks and had no idea what motorway we were on. These men phoned the fire brigade...We ended up with the C.I.D officers, 2 fire engines, traffic officers and the AA man who had to tow mums car and us the whole way back home, so a whole day out and never even got to Hospital. So was post poned till today.

Started IV's today ( a day late) and my port bled back. I have that fear of needles and my port hasn't bled back in years, then in the last month it has bled back straight away twice, so lets hope this is what the future holds but we will see. I reckon the push ups I have been doing has helped!

Thanks for reading.

IV's on Monday

Has been about 5 months since I had my IV's, in that time I have been my best ever but in the last three weeks or so I have felt my worst:( For the very fist time I am desperate for these IV's and I keep worrying myself, what if they dont help? I haven't had a lung function done for about a month now, I'm reckoning we are going to see a nose dive. I cant even seem to complete a set of crunches, sit ups and little push ups now without being absolutely knackered and chest pain! I'm only going in as a daycase this time, this is new! Its because they dont have any side rooms, then I have to go back up Tuesday for Tobi Levels...O the joys!!! I'm planning on exercising (back to the sit ups and walks and stuff) once on Iv's, as the last month I have been pretty poor at doing them, but I have had so much going on: Moving house, new jobs e.t.c. I haven't had a full nights sleep in ages because I always wake coughing so so much, i've become like adicted to halls because there the only thing that stop it!
Anyway having the IV's and pushing the exercise is all in good cause, not only to be well but I am going to Florida, America in 5 weeks and 2 and a half days!!!!! So excited. With my boyfriend, mum, dad and lovely little sisters. This is why I have got to get better, and this is why i'm so worried what if the Iv's dont have a good enough effect! I reli need to get motivated, as it's hard when your feeling crappy and extremely tired!

I will update soon on what I find out my lung function is and how the Iv's go!
Hope everyone is well
Mogzi x

Lots of things...

Work - job cuts
As everyone knows there are job cuts and worries going on at the moment. My contract ends at the end of September and it was looking very unlikely that my manager could take me back on. Everyone has been worryin about losing their jobs. I got a new job, but haven't heard anything much from them, except for 'struggling to get funding!'. Great....
Then the other day I had to do a presentation about youth clubs/ work to some local managers including my managers manager. After my managers manager told me he has some hours that he needs covering! This is brill news because i need the 6 hours at least to go to uni and I need to be earning at least what I am earning now to be able to afford to live! I also have an interview for another youth work job on Tues,so wish me luck.....
Health
Health is okay at the mo, had a niggling cough for like 3 weeks now tho and antibiotics didn't help. Been put back on cipro for 2 weeks. Going in for planned Iv's on the 20th September...this is because of health and because want to be well for holiday. I've been doing sit ups, crunches and small push ups (and lots of all of them) at least 5-7 times a week for the last 3 months. I belive this is how my lung function is staying up, so wont stop doing them, dont know if i'm toning the stomach tho, which was the initial plan so that I can look alright in a bakini on holiday and not pregnant (which im not). I hope I can carry on doing the sit ups etc..when on Iv's but have a feeling it might keep knocking my port out, which is annoying because I think that will help my lung function go right up.
Holiday
8 Weeks Monday and me, my boyfriend, mum, dad and sisters are off on a holiday of a lifetime.....America, Orlando, Florida!! So excited, done it before and its been amazing each time, this time it's going to be out of this world!

Back to happy

Wow so i had a few days of feeling emotional, tired and drained.
As i had mentioned before hadn't had any antibiotics for three months:D Well i decided to start myself on some now, started on Wednesday. This is because my cough was just getting worse, eventhough my lung function was staying at 2.2 ish. They made me sick wed and Thur but keeping them down now and starting to feel better already!!

Yesterday the firemen had an event to go to where they show the kids the engine and support the local village. Me and the other firefighters girlfriends walked down to meet them, mission of a walk (to me anyway). My legs were feeling it today and last night but i wasn't too coughy or breathless, yay. Then when the men had done there stuff we all went to the pub where a live band was playing and had a couple of drinks. Then we went back to my boyfriends brothers (also firefighter) and we all had domino's pizza's. After all this me and marc walked home at 10ish. They live about half a mile from us. So in all we did about 3 miles walking, which doesnt sound much but i only usually walk about a mile. Feel really glad about it today and want to do it more.

Its summer holidays:D My working hours have been cut right down and get to see more of my little sisters, family and my boyfriend. I think this week we are planning on toy story wed at cinema and bedgebury for a bike ride wed! Then again my new job might suddenly ask me to work more. Then me and marc are camping at the local car show sat night with my parents, local band in evening again and custom cars in the day!

Hope everyone is well!
Take care
ME xxx

Emotions grrr

I hate those days where for some reason you find anything you possibly can, to cry about. I always end up feeling stupid after cos all the things are pathetic and just because i am crying about one thing i seem to add all the little things that are worrying me to make it worse and i end up in a big mess. I then try and put together why i am crying and it's something completely different to what it started out as. Poor Marc gets it all, and he does the best possible job at cheering me up. I also take things out on him when i am stressed. I am messy and un organised which is unfair on him too:( Gonna try and change, but he says he loves me as i am hahaha, dont know how.

My LF was 2.25 at my last hosp, Thurs just gone. Good again but im starting to feel crappy so think antibiotics are needed, stupid cough! I really wanna wait till after next weekend, we will see, see if i can handle havin this cough that long!

Anyway my parents party a couple of weekends ago was brill. I got quite drunk with a few mates. Me and my bestest mate are a crack up drunk. She was crying cos the band stopped playing and we head banged to like 3 songs in a row which resulted in the worst neck ache for the next 3 days. My lil sis was soo drunk she puked everywhere. My sisters friend (girl) was hitting on a guy, who is a homosexual so he was not really diggin it. My mums best friend went home at 1am (when it finised) and danced in her kitchen with her best mate till 5 am. So all in all a random night!

This is all, i just have to mention i love marc very much, as he is on a call atm, which he usually is when i write on here and i miss him very much xxx